Patient and public involvement

The aim of Neuripides is to involve patients in all stages of the research with respect to the planning, delivery and dissemination of the results.  The patient-researcher group advises on the study protocols and ethics applications. Specifically, they will check the information material for readability but also advise more broadly on study protocols, for example the need to keep patients motivated and engaged in the neurofeedback procedure and minimise the burden to patients and carers. During the project the patient representatives will be asked to advise on and provide input on all stages of the studies from the patient perspective. The representatives from the Dutch Parkinson Society participate in the monthly consortium calls, which provides opportunities for close involvement in the delivery of the research. The Dutch Parkinson Society will disseminate information and results through the Society’s media channels.